A little update

06/08/2014
Added by me, Clare! XOXO

06/02/2014
by Jamima Wolk
I thought I’d post this very touching email that Clare’s father wrote about what the family is going through right now:

The cancer that my beautiful daughter Clare has been fighting for the past eleven years is now winning the war.

Five different rounds of chemo drugs, months of radiation, and 6 major surgeries have taken their toll on her once beautifully healthy body. She can take no more, and the cancer knows it. In its insidious way, it has now cut off all motor control to her legs, so she is either in bed or a wheelchair, and is pretty much unable to move on her own. She is now on a 24/7 morphine pump, and Yolo County Hospice has been superb for medical and spiritual care. If the World consisted only of Hospice people, we could rename Earth ‘Heaven’. Well, almost.

It’s the inability to move herself that has necessitated our getting some in-home care. Marie, David, and I just could not handle it all on our own, in addition to taking care of Sid and keeping our own selves healthy, and enabling David to keep working.

Right now, Clare’s comfort and quality of life are priority number one. So without knowing how we’ll ever afford it, we went ahead and hired the wonderful Fijian In-Home Care people to come in from 10:00pm to 10:00am each night. The Fijians are another beautiful group of people that we now have the pleasure of knowing and working with.

I’m sorry, but it’s come to the point of requesting financial help for the in-home care so that we can make sure that Clare is as pain-free and comfortable as possible. That is our one-and-only priority in life at this point.

Anything that you contribute (help with) will go to the In-Home Care group so that we make sure that the rest of Clare’s life is as peaceful as possible here at home.

The words “thank you” seem inadequate, but I don’t know what other words to use. Thank you.

-Steve Long

– See more at: http://www.youcaring.com/medical-fundraiser/help-clare-her-young-family-fight-cancer-/155285#sthash.62XNuStk.dpuf

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